Holidays

Surviving Holiday Family Time When Your Child Has a Communication Disorder.

 

It’s the most wonderful time of the year, or so we’re told.  When we have a child with a communication disorder, whether a language delay, a stutter, or an autism spectrum disorder, we tend to want to shut down the whole holiday season, especially if it means time with extended family.

 

To be fair, many of us have been blessed with supportive family members, but most of us have at least one person in the family tree who just doesn’t get it.  They display their lack of knowledge through judgment or exclusion.  Today, I don’t want to discuss how to make ourselves feel better.  That’s for when we have a psychologist guest blog.  Below, you will find ideas to make the holidays smoother for your child.  These suggestions are not age or diagnosis specific, but general guidelines to make the most of a potentially difficult situation.

1.     Provide a schedule of events: Depending on the needs of your child, you can provide a picture schedule, a social story (http://carolgraysocialstories.com) or just share photos from past holidays to discuss the usual order of events.  

2.     Give your child a “job”: This will help your child integrate into the extended family, make him feel useful, and give him something expected to concentrate on.  Your child could collect coats, plan activities for younger cousins, or be a photographer.  If his tech talents are high, he could gather his photos to create a slide show to share at the end of the get-together, or he could email them to family members after the holiday.

3.     Plan for and practice gift-giving: Practice taking someone else’s point of view when choosing gifts for others.  You can model this when you are out shopping by saying, “Grandma loves to bake, so I think she would like these cupcake tins.”  Follow up with asking what your child thinks someone else might like.  Setting aside time to make gifts for others is especially thoughtful and can add to your child’s sense of accomplishment.  The internet is full of simple craft ideas.

4.     Prepare your family through a newsletter: Often, a family member says something thoughtless about your child because of lack of knowledge, so give them the information they need to understand.  There was a time in our lives when I would send out a quarterly email to everyone on my daughter’s “support team.”  These were friends and family members who had agreed to take a special interest in helping my daughter achieve her goals.  In the newsletter, I would include information about her education, her accomplishments, her social activities, and any difficulties that we had confronted.  Another type of newsletter would be to simply update your extended family members about everyone in your family via email on a regular basis.  This works especially well if your siblings agree to do the same, creating a family tradition of sorts. Keep in mind that you should not write a list of demands on how to accommodate your child. If your child is a picky eater or if they have food restrictions, feed them before the event, and bring appropriate snacks.

5.     Prepare activities: Bring crafts, movies, and/or puzzles.  Toss a ball around outside. Electronics will tend to isolate your child; try to stick with an activity that can be shared with all the children at the same time.

6.     Alter questions: If your child has difficulty answering questions, particularly lengthy ones, reword them into choice questions.  For example, when Aunt Judy asks, “How is school?”, reframe her question into “Is your favorite class art or math?”.

7.     Share supervision: If you have a significant other, discuss ahead of time how you will share responsibilities for your child. What will happen if your child has a melt-down?  Who will take care of any disagreements among the cousins?  Who will make sure that the child has eaten foods within his diet plan?  Trouble brews when both spouses think that the other one is supervising.

8.     Review the rules of the house: Prepare your child by discussing the rules of the host’s house. Maybe Grandma doesn’t like grandchildren to touch her prized figurines or Aunt Shelby doesn’t let food in the family room.  This is also a good opportunity to talk about other people’s perspectives and viewpoints. 

9.     Preplan a break room: If your child needs quiet alone-time because of overstimulation, discuss a safe room with the host ahead of the holiday.  Allow your child to bring a favorite toy or blanket into the room, and make sure you check on him on a regular basis.  Obviously, this suggestion is age-dependent.

10.  Discuss social expectations ahead of time: What happens if they hate a gift or if they don’t like their dinner?  Review and roll-play the proper responses well in advance.   If your child tends to dominate the conversation talking about their specialty interests, roll-play conversations where she gives no more than 3 pieces of information at a time, allowing the conversational partner to contribute as well.

 

There is no way to guarantee that your child will have an easy time at a family gathering or that a family member won’t say something insensitive to you, but at least improve your chances that you will survive the holidays. And remember, leave before your child is worn out!

LeeAnne Fura, MS, CCC/SLP

It’s Thanksgiving! What are You Thankful For?

It’s almost Thanksgiving, the one time of the year so many of us sit around and give thanks.  “What are you thankful for?” How many of us ask our children that question at Thanksgiving?  How many children give the perfunctory answers, “my family”, “my house”, or “my friends”.  More often however, it seems children and young adults are answering material things such as, “my I-Pad”, “my phone” or other electronics.  Going beyond the answers that people stereotypically give, there are so many things to be thankful for that we experience in our lives on a daily basis. 

In addition to being thankful for our own families we are also thankful for the many families we have worked with and continue to work with over the years.  In a previous blog, LeeAnne talked about what Audrey taught her about being a parent of a “child” with special needs.  LeeAnne, Theresa, and I have also been very fortunate to have jobs where children, young adults, adults, parents and other professionals have taught us so many things and have given us so many gifts of knowledge and experiences; for that we are thankful. 

Our clients and their families have shown us how to be more patient, flexible, and accepting; to constantly expand our knowledge base, and to become more grounded at times.  Even though our job is to support and teach our clients, so often our clients support and teach us.  From the time an 8-year-old told me, “Miss Carol, you need to learn that you cannot do everything” at a time when I was very overwhelmed.  When I had told that same client (who I had really encouraged to try to overcome various challenges) that I was going to do a Polar Plunge to challenge myself, he kept telling me that he knew I could accomplish this task. I found out the wind chill was going to be around 7° that day and considered backing out, but I knew that young man had faith in me.  I also realized I had the choice of backing out and demonstrating to this young man that I could push him but not push myself; back out and lie to him, which I could not live with; or meet my challenge.  As I ran into the ocean that day, I could hear his encouragement in my mind saying, “You can do it, Miss Carol!” It was because of him that I met a personal challenge! 

Recently a young man, who has a difficult time recognizing perspectives of others, realized he was going to be having a session the evening of my birthday.  When his mother offered to bring in dinner for us, he decided we should have salads instead of his preferred McDonald’s meal because he knows that I love salads.   In addition to picking out a salad based on several of my favorite salad ingredients that he had learned about from years of our conversations and his observations, he also ate a salad for the first time ever!  What a wonderful gift he gave of himself!

How can you not be thankful when you hear a child say his first words or sentences?  Or tell his mother, “I love you”?  What an incredible feeling one gets when you see someone who recalls and verbalizes something they remembered from several years ago before they began to converse, especially when so many people assumed that his inability to speak equates with limited knowledge. Just imagine hearing a child ask for help for the first time instead of crying, hitting, screaming or cursing.

How can you not be thankful when you hear a child offer to help you with something for the first time because they observed that you are having difficulty?  (Even if that child is trying to lift you up to reach something that you cannot reach!)  Imagine the smile you would have when a child finally accepts being teased in a fun way and teases you back like the boy who was working on “Imagine if…” situations. He was given the example “Imagine if you came into my office and noticed that my desk was clean?” to which he responded, while smiling, “I could never even imagine that!”

How can you not be thankful when you see a young adult begin to ask a variety of questions to get information or to carry on a conversation years after others thought he was past the age of receiving language therapy? Or see a young adult finally being able to explain reasons for something he did or did not do and have reasons I would never think of?

I could go on and on. There are so many things to be thankful for and I am fortunate to experience these things every day when I go to work. So again I say, “It’s Thanksgiving!  What are you thankful for?”      

-Carol Walck, MS, CCC/SLP